August 13, 2019

Making Friends at Back-to-School

It’s almost time for Evelyn to start kindergarten. I know she loves her school, and pre-k seemed like such a success. She loved music and art. […]
November 8, 2018

The Pre-K Activity That Sank Me

Pre-k has been going well for Evelyn – she loves her class, calls everyone her best friend, and has been able to maintain her energy levels […]
October 19, 2018

The Things I Don’t Say

Blogging about Evelyn’s mitochondrial disease has been harder than I thought it would be. It’s why I don’t blog more, or post more on Facebook, or […]
August 19, 2018

Preparing For School, or: Why I Haven’t Slept in Weeks

In a week, my girl will start pre-k at the local public school. This new unknown is petrifying. I know it should also be exciting; in […]
April 15, 2018

Cortez’s Post

Evelyn as my sister is fun and hard at times but it’s mostly fun! I love playing games with her. sometimes when i am playing video […]
March 26, 2018

Painting

I love to watch Evelyn paint. She swirls every color together deliberately with her brush, then painstakingly lays each brushstroke on the canvas. She doesn’t get […]
March 4, 2018

Things I’ve Learned (Part One)

This post is Part One of a series in which I chronicle, in no particular order, things I’ve learned from Evelyn. I’ve learned that I have […]
February 16, 2018

Let’s talk about medical marijuana: OK SQ 788

I’m 33 and I’ve never tried marijuana. Never smoked a joint, never tried an edible, never even sampled CBD oil. But you’d be hard-pressed to find […]
February 3, 2018

From Ruby: A Sister’s Perspective

Having Evelyn as a sister can be difficult at times. Sometimes she can be repeating the same thing multiple times and I won’t be able to […]
January 29, 2018

Diagnosis Day

It was January 10, 2017. We took the older kids to school and my husband and I got in the car with Evelyn for our 110 […]